Katsassys RSD/CRPS Help ........... |
A support group to link you to others and to help you through. We can add some humor and music to soothe the BAD DAYS we all will daily encounter!! |
MICHIGAN & THE WORLD |
We all need help juggling the PAIN !! |
First let me Welcome you to "our" Homestead; where it is hoped that you will make the necessary connections to the outside world to help yourself fight this ruthless disease we call - REFLEX SYMPATHETIC DYSTROPY. (Medical Community is using a new name called CRPS=Chronic Sympathetic Pain Syndrome) ******************************************************************************************** But we all know that you can slice that bread any way you want and it still means "PAIN-PAIN-PAIN" ******************************************************************************************** Now my name is Katsassy; (Yes, I have RSD & multiple other related additions) and it is hoped; that when you leave this page, you will leave here with more information than you came here with (and if you don't, make sure that you email me and tell me what it is you needed). We are going to start out with the basics and try to put as much as humanly possible on these graciously free pages or open another one to LINK too. ******************************************************************************************** "OK, LET US START OUR JOURNEY and CHECK OUT THE CENTER CORNERS ABOVE" ******************************************************************************************** CAUSES: Quite simply; it can be caused by stepping off the curb or a VERY traumatic injury to your body! TREATMENT: That will depend entirely on your physician of choice - but with good luck, you will catch its early (infant) stage where they have been reporting cures. However; the down side is that the longer it takes to find your diagnosis or a Doctor, the higher percentage that it will stick with you for awhile. Following the orders of a qualified, knowledgeable doctor in the field of RSD/CRPS is hard to find; but they are out there and there are new medications and rehabilitation technics that will help you along the road. NEVER SAY NEVER AND KEEP THAT SMILE WORKING! Some days will be worse than others; but believe me, you will make it!!! No doubt about it! I'm not a member of the medical society, just a layman who's trying to get to the top of this mountain and scream I made it and "they said I wouldn't". RESEARCH RESEARCH - DON'T YOU STOP LOOKING!!!!!!!!!!!!!!! PHYSICIAN: Pick one carefully, your going to become real close buddies in this fight and it has to be someone that can trust your life to! Make sure that you keep notes, write down your questions, make sure you get your answers before leaving the office, take pictures of what is going on with your body and show your Doctor! PSYCHIATRIST/THERAPIST: NO YOU ARE NOT CRAZY!!!!; you may get depressed and thats OK, just find yourself a GOOD therapist/psychiatrist that REALLY will listen to you and make you feel WONDERFUL ABOUT YOU and let them teach you some new skills to deal with the pain and depression! Heavens yes, use those Support Groups! RULES: YOU don't give up and YOU don't hit anybody over the head with your kitchen sink (smiles)!!! MEDICATIONS: Now that is between you and your Doctor, help him/her find what works for you. Be very blunt about whether or not the medications your doctor has you on are working or not. If you hear about something new, discuss it with him/her and discover what is best. It's OK, you don't always get the right combination the first time out, so try until your team wins!!!! REHAB/PHYSICAL THERAPY: I don't know of a physician yet that doesn't recommend it; so try it, don't tell me that there isn't something out there that just might help ---- because then I would have to argue with you over the wonderful beauty of being free from a wheelchair in the pool of my choice and help these ole' muscles and the blood circulation that we all need to have in good working order. So try it and keep trying until you are absolutely positive that nothing works and then email me for lots of (((((((((((((HUGS)))))))))))!!!! ******************************************************************************************** "PLEASE VISIT EVERY PAGE WITHIN "OUR" HOMESTEAD AND ALL SUGGESTIONS WILL BE APPRECIATED!!!" BACK TO TOP & CLICK ON THE NEXT BUTTON ON RIGHT THIS PAGE CONTINUES AFTER THE GUESTBOOK!! |
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This page was
last updated on:
September 30,
2001
*************************************************************************************** Thank You for stopping into "Our" Guestbook and leaving your visit comments in it!!!! *************************************************************************************** ......................................................... Our Journey continues................................................................... *************************************************************************************** You Don't take; "it's all in your head for an answer"; Our Brains act as computers to our bodies and when you have RSD you have a gliche in your brain function (this is how the doctor explained it to me), emotional and psychological problems have been determined to be a result of the PAIN that comes with RSD. So though RSD is all in your in your head due to the gliche, YOU ARE NOT AS CRAZY ; But the Doctor who says to you, go home and learn to live with it because it is all in your head (that one means you are crazy in his eyes) is the crazy one. (Here is a chuckle: it is all in your head; but not in the way the Doctors are saying it means!!!!) You are "sane" - it's the pain!!!!!! This will make more sense further along our journey. IF YOUR VISIT HERE IS BECAUSE YOU WERE JUST DIAGNOSED WITH ANY FORM OF = RSD/SMP/CRPS (reflex sympathetic dystrophy/sympathetic maintained pain/ complex regional pain syndrome); you are probably soooo filled with questions you think your going to blow up? Well your not!!!, that is "blow up". Let me see if I can cover just a few; 1) What is it? 2) How? 3) Whats the cause? 4) Why does it hurt so much? 5) When does it stop? 6) Is it catchy? 7) Can I give it to someone else? 8) What is the cure? 9) Why me? 10) I've never heard of this? 11) Denial! 12) I don't understand why!!!??? 13) Anger 14) Fear 15) Totally Confused!!!!! You have been traumatized in some way and it could be a multitude of different things!! Your having trouble with ANYONE believing the PAIN; Your having trouble with your Doctor; Your having trouble with your Insurance Company; whether it be private or workers compensation (which is covered on INFO #2 page) here; Your having trouble with Social Security; Your having trouble with Family, friends and co-workers; You have people avoiding you; Your avoiding the disease; Your taking it out on the people closest to you and can't understand why your doing that or you don't realize you are; This is called displaced anger!!! Does any of this sound or feel familiar?????? How about the words "YOUR A FAKE OR A FRAUD"????? Has someone (insensitive or ignorant at best) said this to you or are you experiencing that right now and don't know where to turn???? The proof is in the pudding as my father use to say (God rest his soul); but then there is the government agencies who you could stick this proof right in front of them , and because its back scratching time - your up as the TARGET! Because you won't keep your mouth shut!!!!! And you keep helping people !!!! Or are your just trying to survive and need certain medical equipment or maybe a vehicle and the doctors are behind you one hundred percent and so re certain powers to be and because of this YOUR THE TARGET!!!???? As if you don't have enough on your plate to deal with. BET YOUR HEAD IS SPINNING NOW or YOU DIDN'T THINK ANYONE ELSE UNDERSTOOD!!! Hey, if it will make you feel better; I've considered having a permanent BULLS EYE tattooed on my back!!!! YOU KEEP YOUR HEAD UP HIGH, YOU KNOW THE TRUTH!!!!!!!!!!!!!!!!!!!!! You, want to go to work so bad you can taste it like Apple pie; but how do you tell the employer that RSD condi- tion requires you to take off excessively and it may even require you to have to lie down for a couple of hours just to get back enough steam/strength to finish the day, NOW let's get real and where is anyone going to find a Employer who will agree to that ??????? And these WC companies really DO know more than they would care to let YOU know they know....................how ridiculous!!!!!!!!!!!!!!!!!!!! MORE UPDATING COMING!!!!!!!!!!!!!!!!01-05-2001 |
Theme Song of "Ice Castles" |
