*************************************************************************************** Thank You for stopping into "Our" Guestbook and leaving your visit comments in it!!!! *************************************************************************************** ......................................................... Our Journey continues................................................................... *************************************************************************************** You Don't take; "it's all in your head for an answer"; Our Brains act as computers to our bodies and when you have RSD you have a gliche in your brain function (this is how the doctor explained it to me), emotional and psychological problems have been determined to be a result of the PAIN that comes with RSD. So though RSD is all in your in your head due to the gliche, YOU ARE NOT AS CRAZY ; But the Doctor who says to you, go home and learn to live with it because it is all in your head (that one means you are crazy in his eyes) is the crazy one. (Here is a chuckle: it is all in your head; but not in the way the Doctors are saying it means!!!!) You are "sane" - it's the pain!!!!!! This will make more sense further along our journey. IF YOUR VISIT HERE IS BECAUSE YOU WERE JUST DIAGNOSED WITH ANY FORM OF = RSD/SMP/CRPS (reflex sympathetic dystrophy/sympathetic maintained pain/ complex regional pain syndrome); you are probably soooo filled with questions you think your going to blow up? Well your not!!!, that is "blow up". Let me see if I can cover just a few;
1) What is it? 2) How? 3) Whats the cause? 4) Why does it hurt so much? 5) When does it stop? 6) Is it catchy? 7) Can I give it to someone else? 8) What is the cure? 9) Why me? 10) I've never heard of this? 11) Denial! 12) I don't understand why!!!??? 13) Anger 14) Fear 15) Totally Confused!!!!!
You have been traumatized in some way and it could be a multitude of different things!! Your having trouble with ANYONE believing the PAIN; Your having trouble with your Doctor; Your having trouble with your Insurance Company; whether it be private or workers compensation (which is covered on INFO #2 page) here; Your having trouble with Social Security; Your having trouble with Family, friends and co-workers; You have people avoiding you; Your avoiding the disease; Your taking it out on the people closest to you and can't understand why your doing that or you don't realize you are; This is called displaced anger!!! Does any of this sound or feel familiar??????
How about the words "YOUR A FAKE OR A FRAUD"????? Has someone (insensitive or ignorant at best) said this to you or are you experiencing that right now and don't know where to turn???? The proof is in the pudding as my father use to say (God rest his soul); but then there is the government agencies who you could stick this proof right in front of them , and because its back scratching time - your up as the TARGET! Because you won't keep your mouth shut!!!!! And you keep helping people !!!! Or are your just trying to survive and need certain medical equipment or maybe a vehicle and the doctors are behind you one hundred percent and so re certain powers to be and because of this YOUR THE TARGET!!!???? As if you don't have enough on your plate to deal with.
BET YOUR HEAD IS SPINNING NOW or YOU DIDN'T THINK ANYONE ELSE UNDERSTOOD!!! Hey, if it will make you feel better; I've considered having a permanent BULLS EYE tattooed on my back!!!!
YOU KEEP YOUR HEAD UP HIGH, YOU KNOW THE TRUTH!!!!!!!!!!!!!!!!!!!!!
You, want to go to work so bad you can taste it like Apple pie; but how do you tell the employer that RSD condi- tion requires you to take off excessively and it may even require you to have to lie down for a couple of hours just to get back enough steam/strength to finish the day, NOW let's get real and where is anyone going to find a Employer who will agree to that ??????? And these WC companies really DO know more than they would care to let YOU know they know....................how ridiculous!!!!!!!!!!!!!!!!!!!! MORE UPDATING COMING!!!!!!!!!!!!!!!!01-05-2001 |